Message Board

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ABrogan — Wed, 15 Oct 2008 18:29:10 GMT

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Welcome

Ellen — Sat, 12 Jan 2008 00:26:12 GMT

I want to welcome everyone to this message board. Feel free to post any question or concern you may have.

As for me, I have experienced TPN for 15 years with my son. So I am a old hat with that. Now my Husband Dave is on TPN. So I understand dealing with kids on it, and dealing with the adult. In some way, it was allot easier with my son. He did not talk back.....LOL Like Dave does....LOL

I also have done NG, NJ, G, J and GJ feeds, with many different types of formulas. That has all changed, now. But I can be of help. I sure know how to deal with doctors....

My life over the last 21 years, has been dealing with some kind of illness. Sadly, I also understand dealing with losing someone you love, our son, Shawn, passed 5 years ago. It was not due to TPN, if anything TPN gave Shawn a life, that he would not have had if we did not do TPN. I believe that TPN can be a life saver. Many people are told if you start TPN
you will not have a good out come. This is wrong in my eyes, if it is managed right, and with the right doctors, and the right home care company, you can have a long and happy life. I know this, because we have gone thru the doctors, and home care companies to know. I believe this with my whole heart.

Well time for me to get off my soap box. Feel free to express your ups and down, with this life we have all been given. Vent if you want, we are all shoulder to cry on. We all understand each other in so many ways. We are here to help when we can, and just to say how unfair life can be sometimes. We all live a far different life then what we planned or hoped for.

Ellen

Favorite Products

ABrogan — Tue, 11 Dec 2007 16:05:29 GMT

I have been using enteral and TPN products for my daughter's care for almost two years now, during this time I feel like I have found some products that I love and wish I had known about earlier. Things like the curly tubing for TPN or the Infinity pump for her formula with the little backpack.

But, I can't help but think that there might be some great products out there that I don't know about yet.

What products do you all consider to be "Life Savers"? Any suggestions would be great.

Abby

Trying the Bone!!!!

Ellen — Mon, 10 Dec 2007 02:21:47 GMT

Well Dave has had "The Bone" Catheter Securement Device, on for about a week. He really likes it, so far. He has had two showers, and it is still holding. Much to my surprise. He also likes it for his skin, is just not liking dressing changes, to often. So the long it stay on the better. Plus it does not take up a much area, as far as tape goes. It is holding his catheter very well, has not pull on his site at all so far. His catheter, does not fit with the y in the center, we have to put the y on top of the holder, but keeps his line very secure.

Has anyone else try this?

Does anyone have any near things that you are trying or doing. I am all ears....

We just rigged Dave bag, so he will be happy with that. Everyday it something else we have to try to help him be happy.....LOL

Ellen

Coping with stress

dnoble — Thur, 06 Dec 2007 21:24:30 GMT

The world of home nutrition therapy is full of daily stress in addition to the stress of everyday life.

How do you cope with the added stress of being on home nutrition therapy? Are there certain things you do so that you aren't just surviving on home nutrition therapy but THRIVING!!!!

Advice for new Consumers

dnoble — Thur, 06 Dec 2007 21:22:34 GMT

Entering into the world of home nutrition therapy is difficult and often times you feel like you are in a new world where you don't speak the language or know how to navigate the journey.

What advice would you give a new consumer or parent of a new consumer? What do you wish someone had told you when you first started this journey.